hi i am new here and still awaiting a diagnosis like you. i can relate. this group has been super supportive and loving. here you can feel safe and be honest.

I get a lot of support from this group. My first doctor would not make a for sure diagnosis unless I had a spinal tap. I never got one but I did get a new doctor. Sometimes this disease calls for patience, which I can be very short of. Take this time to learn what you can and remember, we all may have the same disease but it manifests differently in each of us.Blessings.

Often physicians will feel threatened in people seeking outside guidance and it can also make their job more difficult as patients sometimes second guess them and listen to something that someone told them that can be wrong. Often time its not and just the "God Complex" syndrome manifesting itself, they don't like to be questioned or challenged. However, both can be critical for someone experiencing MS as the advice of those who have been through the trenches can be invaluable. Sorry you don't have a diagnosis yet as you will hear from some on here it can happen quickly but for some it can take years. The main thng is lesions meeting the McDonald criteria. Without this they are fishing as why many will need to have spinal taps, and more complete work-ups. Be thankful they ar3e not rushing it as a misdiagnosis can be devestating and potentially harmful (for ex, NMOSD is not MS and using MS drugs in an MS patient can make them worse)

No I have sewn a neurologist and Neurosurgern.I did have Cerrebellar tonsiller ectopia, which is Chiari Malformation and she said it wasn't. .I have the number to one thinking about calling him.

Have you tried seeing a Neurologist that specializes in MS? That would be my recommendation if you're not. Hopefully you will have answers soon