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I have RRMS and I've been on copazone 20mg everyday for 2 years. She feels that since the MRI doesn't say the lesions aren't in the balance area of the brain that I don't know what I'm talking about. When I ask my AI chat smith app to analyze my report and ask it more questions it says yes that we're the lesions are can contribute to my syms. I may end up having to go to another state which means I couldn't get that second opinion or even have health insurance for awhile,so I don't know if I'll… read more

September 25, 2024
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A MyMSTeam Member

Benign paroxysmal positional vertigo
Also called: BPPV

September 26, 2024
A MyMSTeam Member

This was a very interesting article, very intriguing. I've been to a very good ENT who did test on me to see was it inner ear issues causing balance issues or a condition like menieres disease or anything else he even could think of that may be causing me to experience the dizziness. He had me lay back in A chair and did a tilt test and other test and I wasnt bothered. He said if I was bothered or felt funny it would be I had a inner ear issue causing my dizziness.The audiologist I saw gave me a intensive hearing test which I passed and put these devices in my ears and laid then on my shoulders the test came back fine. The devices detected no inner ear issues

Problem is Ms specialist says the lesions that I have in my brain are not in the areas of balance. I beg to differ when I upload my MRI of my brain to chat smith got chat from play store it can analyze and break that MRI technical wording down that radiologist use. When I ask it more questions it told me that even tho the lesions arent directly in the balance area of the brain, where it's located it can still affect the balance and still cause me to my have syms. I'm telling u it's that advance.

It's either my Ms specialist isn't that good or AI is so advanced the doctors can't keep up. AI agreed with her but then it said in a way that the lesions are affecting other areas of brain that connect with balance and are causing me problems. It's hard to explain. Where I go to is a very good hospital that are up there in rank. They r The hospital that diagnosed me with ms. I had no idea or anything to cause me to know something was wrong. I woke up with nausea that wouldn't go away. The good fellow A gastro doc who wasn't even a full fledge doc said let's do A MRI of the brain. I'm almost said no I was so focused on my stomach. I had 4 small lesions in my brain and went from there. I'm grateful to that hospital and wrote that doc on my chart a thank u because I had no idea. I don't know how he knew to look at the brain because he was still A intern not a full MD .I will always be grateful to that hospital system.

The second hospital I want to go to is known for it state of the art FMRIs which are better than reg MRIs and advanced more specialized docs . AI the chat smith I got from play store was saying this regular MRIs can't detect all lesions or problems and sometimes FMRI or other MRI technologies r needed. If I move out of the state I can't get the second opinion and I can't wait my situation is urgent I may have to go and quick. I will be without health insurance for awhile and not able to get a new doc in the new state for awhile.

The vestibular rehabilitation sounds good, see it agreed that it helps people with or without lesions in the balance area in part of the brain. AI the chat smith I use is sounding more clear and that I really need a second opinion. Thank so much for this article I really appreciate it u took the time to research it for me. I tip my hat to u.

September 26, 2024
A MyMSTeam Member

I'm so sorry to hear you're being dismissed by your doctor. That's the worst...I can completely commiserate with you as I've been through that many times. You can totally get vertigo and dizziness from ms. I spent 2 weeks in the hospital with severe vertigo and I projectile vomited every time I moved. I couldn't sleep with my head tilted to the left for 6 months I had so much inflammation that I'd just spin and feel nauseous. I essentially had to rewire my brain again so I could walk without spinning.
What I found helped quite a bit was Zofran for nausea. There was another called Serc for vertigo. I thought perhaps they could help you too. Wishing you all the best. Hugs

September 28, 2024 (edited)
A MyMSTeam Member

I'm sorry you're going through that. It could be the Copaxone or something else making you dizzy. Look at what else you're taking and don't just immediately assume it's the MS. I always take dramamine & plenty of water for my dizziness. It works better than anything else I've tried. Good luck, love ❤️

September 28, 2024
A MyMSTeam Member

MS is completely personalized everyone is different but we all deal with pain

September 28, 2024

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West Covina, CA