You know I told you to find someone else a neurologist this doctor now
dosen't know what she is doing so please find someone else.

Scary, right? I understand. I've been on MS meds since 1998, 1st Avonex for a couple of years, and then Gilenya. I was lucky 'cause I have an excellent neurologist. Unfortunately Novartis no longer dispenses Gilenya. I've decided to stop disease modifying meds. I'm in my mid 70's and I am more than grateful for the help and care of family and friends, and an awesome neurologist. Hang in there my friends, persevere....and believe in yourself....and be strong.

My neurologist presented kesimpta, ocrevus, and aubagio as first line treatments for me. I do have JCV.

The way she presented it, ocrevus and kesimpta are sister treatments. Both with low PML risks.

I didn’t get more info on aubagio because i can’t do a salt pill.

Perhaps look into other treatments with low pml risk and ask why specifically aubagio was suggested.

Hi Poly911, I agree with you that the medications are scary - sometimes more than the MS!! I would find out why she is worried about the PML risk. Has she had your JC virus antibodies checked and found that they are increasing? If they are, she is right, you do have more of a PML risk. Aubagio is one of the meds that does not have a risk of developing PML. I was on it for 8 years. I chose it because it was one of the meds with the least amount of side effects. You do have to have your liver monitored, but it never affected my liver. My hair did thin and fall out some for the first 2 or 3 months, but after that, it stopped, and it grew back in. I do believe it caused some GI issues as well. It's not a horrible option if it works for your MS. But, every body is different in how we tolerate things, so you might try it and see how it does for you. If you want something that has zero side effects (besides skin-site reactions) consider Copaxone. It's an injection. I wish you the best.