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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Hello, all of a sudden, I can’t control my bladder at all !

A MyMSTeam Member asked a question 💭
Morristown, NJ

I’ve been diagnosed since 1985 and I’ve been self catheterizing since 1993 and I never had this happen before and so quickly does anybody have any ideas? What’s going on?

August 31, 2025
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A MyMSTeam Member

Talk to your Urologist. I have a Neurogenic bladder also. See if bladder Botox works for you. The Medtronic bladder stim does Not work for MS patients!! I heard that from my Medtronic Baclofen pump doctor. No! Don't waste your money! I tried everything until the last option was the suprapubic catheter. I'm either in bed or in an electric wheelchair and my pee comes with me. Never have to get up to use the bathroom. A leg bag or a bigger urine bag .

September 1, 2025
A MyMSTeam Member

That's how I was for a few years (self cathing), about 6 months ago or so I lost most bladder control. Neurogenic bladder

August 31, 2025
MyMSTeam

Sudden changes in bladder control with MS can be concerning and should be evaluated by a healthcare provider right away. This could indicate changes in bladder spasticity, which can cause:

• Urinary incontinence (leaking urine)
• Urgent need to urinate
• Difficulty emptying the bladder completely
• Poor or weak urine flow Show Full Answer

Sudden changes in bladder control with MS can be concerning and should be evaluated by a healthcare provider right away. This could indicate changes in bladder spasticity, which can cause:

• Urinary incontinence (leaking urine)
• Urgent need to urinate
• Difficulty emptying the bladder completely
• Poor or weak urine flow Since you're already using self-catheterization, this sudden change might require additional treatment options. Your healthcare team may want to explore:

• Adjusting your catheterization schedule
• Adding bladder relaxing medications
• Considering Botox injections into the bladder wall
• Evaluating the need for a suprapubic catheter

It's important to get evaluated quickly as incomplete bladder emptying can lead to UTIs and other complications.

August 31, 2025

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