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PPMS. Age 63

June 29
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A MyMSTeam Member

I use it for my legs. It seems to work for them

June 29
MyMSTeam

That's a really frustrating situation β€” being prescribed something that seems to make another symptom worse feels like a lose-lose. It's a valid concern worth raising directly with your neurologist or MS specialist.

Baclofen works by calming overactive nerve signals that cause muscle stiffness and spasms throughout the Show Full Answer

That's a really frustrating situation β€” being prescribed something that seems to make another symptom worse feels like a lose-lose. It's a valid concern worth raising directly with your neurologist or MS specialist.

Baclofen works by calming overactive nerve signals that cause muscle stiffness and spasms throughout the body. However, it can also affect bladder control, which may worsen urinary symptoms for some people. There are some alternatives worth discussing with your doctor if oral baclofen isn't working well for you:

- Intrathecal baclofen (ITB) pump β€” delivers baclofen directly to the spinal canal, which may reduce overall side effects including bladder-related ones
- Botulinum toxin (Botox) β€” can be used as a localized muscle relaxant for spasticity
- Other spasticity medications β€” there are additional options your doctor can explore

A MyMSTeam member shared that after getting a baclofen pump implanted, they felt dramatically better with no pain and improved quality of life.

The key takeaway is that baclofen isn't the only option. Talking openly with your healthcare team about how it's affecting your bladder symptoms is really important β€” especially at 63 with PPMS, where managing quality of life matters enormously.

June 29

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