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A MyMSTeam Member asked a question 💭

Saw an old friend I haven’t seen in years. After some conversation, he said, “I can’t believe how good you look. You don’t even look sick!”
I explained that I have Multiple Sclerosis, not Muscular Dystrophy.
How would you reply?

September 1
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Answer Summary

Members responded with humor, grace, and wit to the relatable question of how to handle the comment 'you don't look sick' when living with MS.... Read more

Members responded with humor, grace, and wit to the relatable question of how to handle the comment 'you don't look sick' when living with MS. Several members suggested simply saying 'thank you' and letting it go, noting that some people say it to reassure themselves, while others offered clever comebacks like reminding people that MS is an invisible illness. A recurring theme was that looking well does not mean feeling well, and the community found both laughter and solidarity in sharing how they navigate these misunderstandings.

A MyMSTeam Member

Just say "Thank you". Take it as a compliment. Leave the rest to the God of your understanding. Some people need to convince themselves that we're ok by saying stuff like that. I want my friends and loved ones to feel ok (even if I dont). No reason to correct them or prove anything to them.

September 2
A MyMSTeam Member

Get a tshirt like the ones I shared or ask him, "And how's your health? What issues do you have?"

September 1
A MyMSTeam Member

Quite SURE THERE is something Invisible to 'naked eye!'

But again... do we CARE?

WE all have SOME SORT OF_____!! something. 🤪

September 1 (edited)
A MyMSTeam Member

Say thanks because they have no idea

September 1
A MyMSTeam Member

Have heard that You don't look like you have MS. Not sure what I'm supposed to look like.

September 1

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