Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Houston, TX

After my recent doctors visit, my neuro gave me the option of switching medications from Copaxone to Tysabri. I didn't have any new lesions or have had relapse. He told me that he was just suggesting it in case I wanted to try something new. On Copaxone I have very few side effects, nothing super abnormal. I know very little about Tysabri other than what I've read. But I wanted to see if anyone out there switched from Copaxone to Tysabri or is just on Tysabri to let me know what your experience… read more

February 15, 2016 (edited)
 · 
Reactions
A MyMSTeam Member

I've been on copaxone for 8 years! NO side affects, except occasional Itching at the site. In 8 years I have no new lesions, I'm thrilled with that, NO NEW LESIONS!!!! I will not go off thls drug, it's working, The other drug I've read & heard some people have had problems with :((. I'll stay with what is working for me ❤️

February 16, 2016
A MyMSTeam Member

I used Copaxone from approximately 2003 to about 2007 when I switched to Rebif. From that, I switched to Tysabri. Tysabri was a miracle drug for me. I went from having approximately two relapses a year which included hospitalizations and being semi-wheelchair-bound, to being able to walk without a cane. I have been on Tysabri since March 2009, and have not had any relapses. I liked Copaxone, but it certainly did not deliver the improved condition that Tysabri did. The down side of Tysabri is the danger you will contract PML. PML is an opportunistic brain infection which can occur because of that portion of your immune system which is suppressed by the Tysabri. If you get it, it is extremely severe and can result in death. The good news is that very, very few people do get it. You will be monitored every three months with bloodwork and every six months to check for the anti-body to PML. If you have the antibody it would mean that at some point you were exposed to the JV virus. The protocol used to be to take you off Tysabri immediately if that happened, but I am not sure if that is the protocol now. In any event, I love Tysabri and plan to take it the rest of my life. There are no side effects other than slight fatigue after the infusion. There is also the added benefit of only having one, one hour infusion every month as opposed to injecting yourself constantly. I am obviously in the "Pro-Tysabri" group. If you have any further questions, please let me know.

February 15, 2016
A MyMSTeam Member

I wouldn't switch if the meds are working.

February 17, 2016
A MyMSTeam Member

I wouldn't switch drugs just because you found a drug that works I having a lot of problems with all my drug intake

February 15, 2016
A MyMSTeam Member

What did you decide? My doctor would like me to switch but I am just not sure.

September 5, 2017

Related Questions

View All
A MyMSTeam Member asked a question 💭
Denver, CO

A MyMSTeam Member asked a question 💭
Providence, RI

A MyMSTeam Member asked a question 💭
Yardley, PA