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Diagnosed in 2001 with RRMS by a MRI and a spinal tap (lumbar tap) Since that time I have had 4 mri and also went through a clinical trial on chemo with MS. In 2014 my neurologist put my MS at PPMS. Yesterday I went to my family doctor and she informed me that mu lesions are shrinking and disappearing, she could not tell me why. So my question is two part; 1. Do lesions disappear? and 2. Do I even have MS? please help I am really confussed.
I have been smoking cannabis before I even was diagnosed with MS and I think that's why my MS isn't as bad. That is my opinion
Since I've been diagnosed in 2003 my lesions have gotten smaller and I don't have any new ones
@A MyMSTeam Member
Lesions come and go as well go into remission. .Further more MRI's are only a snap shot during thst specific period in time and a MRI taken the next day can shown something totally different. . Does this mean you don't have MS ...not necessarily. MS is not easy to diagnose because symptoms may come and go as weel as chagne in the MRI.
No single test can confirm MS icliding a luimpar punch and MRI's Both help to clarify the diagnosis. If there is multiple evidence of scar tissue in different parts of the nervous system shown on the MRI and at least two different attacks of the disease based on one' sypmptoms, typically a MS diagnosis can be made. Additionally MS damage can be found anywhere in the central nervous system, including but not limited to the n brain and cervical spine .If MRI's are not taken of both the Brain and Cervical spine as well as with and without Gadolinium Contrast you can't be certain that there has been no MS lesion activity whether active or in remission. Note typically MS presents with lesions in the Brain but sometimes the cervical spine is impacted. Such as with my DX where the brain was clear but he cervical spine was loaded with lessions. Being that genrally family practice doctors are not well verse in MS particulatly to all the variances of RRMS, SPMS and PPMS as well as the MS protocal used to diagnose MS,( https://www.healthline.com/health/multiple-scle... ), it would be best to discuss this with your neurologist.
@A MyMSTeam Member I'm not an expert but this is how MS has been explained to me. During an MS relapse the coating over the nerves or nerve disinegrates and leave the nerve/nerves exposed and at that point the relapse is occuring. The exposed spot is the lesion and during the relapse the body is fighting to cover over the opening so the nerve/nerves can control the body properly. The patch that heals over is like a scar & can shrink in size and this point is what my DR. says "the lesion is gone or shrinking" I hope I explained thi right, my house is busy right now.
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