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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
August 11, 2024
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A MyMSTeam Member

You will learn to recognize when a flare up is coming on and learn how to minimize the effects; whether it be through medications like steroids, or changing how your living like stress reduction and extra rest. Be observant, experiment and learn what works and doesn't work for your MS. It is a life-long journey and the more you learn about your MS, the better you will be able to handle it.

August 11, 2024
A MyMSTeam Member

I've only had one that I know of but I remember how I felt before it got bad. If I feel what I felt then, I just sit in my recliner and let my husband take care of me and fend for himself. I think knowing is a learning process.

August 12, 2024
A MyMSTeam Member

Thank you to all of you that gave me answers/feedback. After my appointment with my MS Neuro yesterday he informed me that, based on my story (history of symptoms leading up to my diagnosis) he has determined I have a form of Primary or Secondary progressive MS. When I asked him if that's the "worst" kind, he said it isn't necessarily.

My mother had Primary Progressive but was diagnosed in 1992 when there was no real effective DMT's and fewer drugs and/or treatments to help much with symptoms. She did have a Baclofen pump installed in her body and that helped stay mobile for longer. She suffered from MS for 15 years before dying at the young, young age of 61 from complications of MS that included losing ability to eat (swallow), breath or speak. She weighed less than 80 pounds when she passed. He assured me this will not be my fate, as the Ocrevus is very effective and it's simply a different time now for those of us living with MS and all of the symptoms.

Thank you again everyone, for being a place to come and share with caring people that understand my experiences. To know I'm not alone is invaluable.🥰

August 13, 2024
MyMSTeam

To determine if you're having an MS flare-up, consider the following criteria:

- Duration: Symptoms last for 24 hours or more.
- Exclusion of Other Factors: Symptoms can't be explained by other factors like fever or infection.
- Stability: Your condition was stable for 30 days or more before symptoms worsened.

If your Show Full Answer

To determine if you're having an MS flare-up, consider the following criteria:

- Duration: Symptoms last for 24 hours or more.
- Exclusion of Other Factors: Symptoms can't be explained by other factors like fever or infection.
- Stability: Your condition was stable for 30 days or more before symptoms worsened.

If your symptoms don't meet these criteria, you might be experiencing a pseudoexacerbation, which isn't caused by new damage to the central nervous system.

August 11, 2024

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Kansas City, MO