I would ask my doctor this question. I've never taken Ocrevus so I don't know about stopping that. Age may also come into play here. What your MRIs have been showing also is important Blessings to you.
March 29
I’m gonna second the motion to not stop what’s working for you- if it’s working it means no new lesions. No new lesions mean less disability over time. In my twenties I mistakenly followed a doc’s advice who thought “maybe I don’t need the medication; I’m doing so well.” I incurred A LOT of damage (increase in lesions) in my trial off. I regret ever going off meds. And they were “asymptomatic lesions” at the time btw…altho I feel like twenty years later I am feeling the effects of those lesions that happened way back then
March 30
Anything that is going to stop or slow the progression of the disease is worth taking as far as I am concerned. You will not get back what you have lost, so keeping what I have is more than enough reason to stay on Ocrevus for me. I have PPMS. I am also trying to get in a clinical trial that reduces my inflammation. I will do anything to not regress. I am 60 and not ready to give in, too much life to live.
March 28
@A MyMSTeam Member, I know you are a busy bee. Working, dealing with MS and a great single dad. We wish you well, brother. 🤗
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A MyMSTea...
March 28
What are the pros and cons of stopping your DMT like Ocrevus?
It's understandable to wonder if stopping might help you feel better. Here are some potential reasons people consider stopping DMTs:
Possible pros of stopping
* You might experience relief from medication side effects
* Reduced risk of infections that can come Show Full Answer
What are the pros and cons of stopping your DMT like Ocrevus?
It's understandable to wonder if stopping might help you feel better. Here are some potential reasons people consider stopping DMTs:
Possible pros of stopping:
* You might experience relief from medication side effects
* Reduced risk of infections that can come with immune suppression
* Fewer medication costs and less complexity if you're managing multiple health conditions
* Some older adults with stable MS may see less benefit from DMTs as the immune system naturally becomes less active with age
Important cons to consider:
* Stopping DMTs is associated with higher relapse rates
* Even one relapse at any age can significantly increase disability risk
* You may lose ground that's difficult to recover, especially since the ability to bounce back from relapses declines over time
* New lesions or disease progression could occur without the protection of treatment
Among MyMSTeam members currently on DMTs, 68% reported their treatment helped slow disease progression, and only 7% noticed no benefits. Before making any changes:
This is a decision you should make together with your neurologist. They'll want to review:
* Your recent MRI results
* Your relapse history and current symptoms
* How stable your MS has been
* Your age and type of MS
* Whether side effects outweigh benefits
If you do stop, regular follow-ups and MRIs are essential to monitor for any disease activity. The good news is that stopping doesn't have to be permanent—you can restart treatment if needed.
March 28