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A MyMSTeam Member asked a question 💭
Tucson, AZ

I have difficulty getting out of bed in the morning due to spasticity in my leg and urgency issues. Not fun! I tried wearing my hinged AFO (with shoes) to bed last night which helped me bend my leg so I could get out of bed and into my wheelchair. I don't want to have to wear shoes to bed but I need a solution. Altering the amount of baclofen I take hasn't helped. Anybody have any tips for getting out of bed when your leg doesn't want to bend?

February 24, 2021
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A MyMSTeam Member

The AFO I have requires you to wear a knee sock and shoes. The reason I don't want to have to wear the shoes all the time is because I have gotten cellulitis a couple times where my toe rubs against my shoe. Additionally it gets hot in the summer causing your foot to sweat increasing risk of athlete's foot. The plantar fasciitis boots look interesting. I will have to see if they are rigid enough to give me enough support so I can stand. Fingers crossed. Thanks!

February 24, 2021
A MyMSTeam Member

I am not familiar with what a lift recliner looks like, but I will do some research. Thanks!

February 24, 2021
A MyMSTeam Member

I sleep in a lift recliner. I can't swing my legs to manage a bed.

February 24, 2021
A MyMSTeam Member

> difficulty getting out of bed in the morning due to spasticity in my leg and urgency issues.

Sounds like me on bad days. The urgency issues I deal with by ensuring I'm not highly hydrated when I go to bed. But spasticity will sometimes hit my back or abs where it makes sitting up difficult.

My standard routine is to start "stretching" while I lie in bed.

I'll start flexing muscles, tightening them and relaxing them, tightening them and holding them tight for X seconds, and increasing the aggressiveness as I get more mobility/flexibility. Then I'll do full butt-lifts, leg lifts, crunches, etc. On some days that'll be half my stretching exercises before I even get out of bed. :-)

But the key is stretching. Stretch "into" the pain, stop when it hurts too much and hold that position for 20-30 seconds or more. Loosen up and do it again (and you'll often find the pain point "moves" since you're getting more mobility/flexibility) and again.

> I don't want to have to wear shoes to bed

Why not? I don't know what AFO shoes are but my problem is with foot drop. When that acts up I'll often wear plantar fasciitis boots (https://duckduckgo.com/?q=plantar+fasciitis+bra...) to bed. They're clunky and bizarre, and sometimes the velcro from the boots sticks to a blanket/comforter. But that's a minor inconvenience that I'll happily put up with to walk semi-normally.

February 24, 2021 (edited)

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